My wife Nancy
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Printed Date: April 28 2024 at 4:24pm
Topic: My wife Nancy
Posted By: Johnray1
Subject: My wife Nancy
Date Posted: September 06 2014 at 9:31pm
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To all,you want a new subject,I have one. My wife of 43 years has been diagnosis ed with terminal Endometrial Papillary Cancer. She has may be one year to live with out treatment and maybe one to three years with chemo and radiation. But either way,she is going to die. I ask for all of your prayers. Also ,if any one knows of a secret cure for cancer,let me know.I ask and thank all of you for your prayers.Johnray1 |
Replies:
Posted By: CRS, DrPH
Date Posted: September 06 2014 at 10:23pm
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Johnray1, you have our prayers and best wishes. ------------- CRS, DrPH |
Posted By: onefluover
Date Posted: September 06 2014 at 10:25pm
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My heart and thoughts are with you and family John. You are a fine man and her a fine woman to have held it together since you were kids. I wish I could have something so wonderful as that. Cherish your fondest memories and leave room for more. I wish I could say something to you that would help her and make you feel better but I'm afraid I can't. I lost my mother when she was 49, my brother at 35, my sister at 18 and my daughter at 36 hours. I know loss and pain but I know not yours. I will say a prayer for your wife Nancy. ------------- "And then there were none." |
Posted By: mrmouse
Date Posted: September 06 2014 at 10:33pm
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So sorry to hear about your wife Johnray1. I had a sister in law diagnosed with stage 3 lung cancer in 1999. she was given less than a year to live. She went through the rounds of chemo and radiation that didn't really do much. She started smoking marihuana on a daily basis and past away in 2014. She might have lived longer, but she started smoking cigarettes again. The Gerson Miracle http://archive.org/details/The_Gerson_Miracle - rchive.org/details/The_Gerson_Miracle ------------- Opium is the opiate of the masses |
Posted By: onefluover
Date Posted: September 06 2014 at 11:11pm
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One other thing JR. I was diagnosed open ended terminal 24 years ago. I'm still waiting for symptoms. Now I'm reading its 100% curable. But costs $81,000 for treatment by 81 pills. A few days ago I was sued for $81,000 and lost. (I only owed 18k but refused to pay that ballence due to the fact that I was completely ripped off.) How ironic life can be. ------------- "And then there were none." |
Posted By: jacksdad
Date Posted: September 07 2014 at 12:29am
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I am so sorry, John. My wife was diagnosed with uterine cancer about three yeas ago and underwent surgery, and although she's doing well the experience was the most sobering and terrifying we've both had to live through. My heart goes out to you and your wife at what I know must be an incredibly trying time. ------------- "Buy it cheap. Stack it deep" "Any community that fails to prepare, with the expectation that the federal government will come to the rescue, will be tragically wrong." Michael Leavitt, HHS Secretary. |
Posted By: cobber
Date Posted: September 07 2014 at 2:45am
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Hi John, sorry to hear about your wife's ill health For what its worth i copied some info on treatment from Wiki. There is some interesting treatments there. Bit of advice... Beware of snake oil treatments. There are heaps of quacks out there trying to sell you some bull$hit and they are very convincing. My dad has Parkinsons and he almost went thru with stem cell therapy with a nutter from Mexico. We discovered the fraud on quackwatch.com. Very lucky. All i can say is don't give up, fight hard and good luck.
Treatment[ https://en.wikipedia.org/w/index.php?title=Uterine_serous_carcinoma&action=edit§ion=5 - edit ]The primary treatment is surgical. FIGO- https://en.wikipedia.org/wiki/Cancer_staging - cancer staging is done at the time of surgery which consists of peritoneal cytology, total https://en.wikipedia.org/wiki/Hysterectomy - hysterectomy , bilateral https://en.wikipedia.org/wiki/Salpingo-oophorectomy - salpingo-oophorectomy , pelvic/para-aortic https://en.wikipedia.org/wiki/Lymphadenectomy - lymphadenectomy , and https://en.wikipedia.org/wiki/Omentectomy - omentectomy . The tumor is aggressive and spreads quickly into the https://en.wikipedia.org/wiki/Myometrium - myometrium and the https://en.wikipedia.org/wiki/Lymphatic_system - lymphatic system . Thus even in presumed early stages, lymphadenectomy and omentectomy should be included in the surgical approach. If the tumor has spread surgery is cytoreductive followed by radiation therapy and/or chemotherapy. https://en.wikipedia.org/wiki/Uterine_serous_carcinoma#cite_note-sood-3 - [3] In a study to determine if adjuvant therapy should be used in patients with stage I UPSC who had undergone surgery, no increased survival was seen when https://en.wikipedia.org/wiki/Radiation_therapy - radiation therapy was added versus observation, while the postsurgical treatment with chemotherapy may be beneficial but more data are needed. https://en.wikipedia.org/wiki/Uterine_serous_carcinoma#cite_note-5 - [5] A study of the usefulness of https://en.wikipedia.org/wiki/Platinum - platinum -based chemotherapy as an adjuvant after surgery of stage I patients showed that patients with stage 1A who had no residual disease in the hysterectomy specimen had no recurrence regardless if chemotherapy was used or not, however, patients with stage 1A disease with residual disease in the hysterectomy specimen had no recurrence with platinum-based therapy, but those who had no such chemotherapy showed recurrence in 43%. Similarly, patients with stage 1B disease with chemotherapy had no recurrence, while those without chemotherapy had a high degree (77%) of recurrence. https://en.wikipedia.org/wiki/Uterine_serous_carcinoma#cite_note-6 - [6] Trastuzumab[ https://en.wikipedia.org/w/index.php?title=Uterine_serous_carcinoma&action=edit§ion=6 - edit ]In a recent study, about 60% of USCs were found to overexpress the protein https://en.wikipedia.org/wiki/HER2/neu - HER2/neu --the same one that is overexpressed in some https://en.wikipedia.org/wiki/Breast_cancer - breast cancers . The monoclonal antibody https://en.wikipedia.org/wiki/Trastuzumab - trastuzumab (Herceptin) is currently being tested as a therapy for this subset of USCs. https://en.wikipedia.org/wiki/Uterine_serous_carcinoma#cite_note-Santin08-7 - [7] The antibody https://en.wikipedia.org/wiki/Trastuzumab - trastuzumab (Herceptin), which is used to treat breast cancers that overexpress the https://en.wikipedia.org/wiki/HER2/neu - HER2/neu protein, has been tried with some success in a phase II trial in women with UPSCs that overexpress HER2/neu. https://en.wikipedia.org/wiki/Uterine_serous_carcinoma#cite_note-Santin08-7 - [7] |
Posted By: rickster58
Date Posted: September 07 2014 at 3:12am
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So sorry to hear this news Johnray1. My family will keep you and Nancy in our prayers. Stay strong and never give up Johnray1. ------------- spam hunter extraordinaire |
Posted By: Technophobe
Date Posted: September 07 2014 at 5:54am
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You will be in our prayers Johnray. Modern medicine is usually the best option in these cases, alternative therapies are usually snake-oil. However, some supportive treatments are usefull. I am something of a herbalist in my spare time, not that I have much of that. I have no miracle cures, but green tea and red clover both slow down the progress of cancers a little bit. As does a positive mental attitude. Never give up. You never know when medicine will overtake the disease and come up with a better treatment, or even a full cure. It does happen. I'm middle aged and have seen many fatal illnesses become routinely cured, that were a death sentence when I was a child. The difficult trick is to stay alive long enough for medicine to catch up. So fight all the way. Use any suppliment that has an effect on slowing down the cancer. Gene therapy is looking good but that is a race against time. You may be aware of proton beam therapy, which I think is in use in America (Britain gets it in 2018), this shows some promise. Of course you never know what blue-sky research will throw up next. I do not wish to add to your burdens, but I would like to know how things are going. I am sure I am not alone in this. So please keep in touch. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: sleusha
Date Posted: September 07 2014 at 5:54am
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Johnray, I'm so sorry to hear that!! We never know when our time on earth is going to be up. Anyone of us could be taken yesterday, today or tomorrow. We should try to cherish every minute with our loved ones and friends because we just never know when it may be our last day or their last day. My thoughts, prayers and positive energies are with you and your wife. ------------- Be the positive change that you want to see. Live it, be it, push for it. |
Posted By: Albert
Date Posted: September 07 2014 at 6:24am
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John my friend, this is extremely sad news to hear. Our hearts go out to you my friend. I have looked into secret cures myself as I have a couple close friends who are battling the disease, and here is what I've found as possibilities. This is not medical advice whatsoever and is more of a hail Mary throw - but you can look into these: The Chinese are big on a drug (remedy) called "Kanglaite". I believe the U.S. may be doing trials on it, but you can obtain it online. I've also heard a lot about "B17", which I believe is crushed apricot pits. That one could be risky and requires research and may be banned for improper use. Both could be worth looking in to. It's a stretch, but possible. Hang in there my friend and we are all with you 100% all the way. Feel free to email or contact me anytime. Our prayers are with you and Nancy - and miracles do happen. A ------------- https://www.facebook.com/Avianflutalk |
Posted By: Guests
Date Posted: September 07 2014 at 7:52am
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John, I know what you are going to go through as I took care of my first wife for 7 years before she had a heart transplant and the heart they gave her was damaged internally. She passed a way after 42 years of marriage on her 62 birthday 18 days after the transplant. Put you trust in God and that his will, will be done in yours and your wife's lives. We may not understand why things happen but with our trust in the Lord we know he knows the best for us. He will see you through this trial that has come to your family. Our prayers are with your family. God Bless you and your family. |
Posted By: Guests
Date Posted: September 07 2014 at 9:16am
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Johnray1, lost my husband 2009 to pancreatic cancer. Cancer is a journey that no one wants to take. He went through chemo that did not work and he decided to stop and enjoy what life he had left. We did that to the best we could in his condition. Just spend time together, enjoy each other. Get your house in order. He had only 3 months to live so we did wills, trusts, even picked out his casket since we already had spots in the mausoleum next to our son. We did this right away because we did not want to do this when he was really sick and not thinking right. We had wills and trusts already but we made sure they were in order my husband made sure I had everything made easy for me after he was gone. This was a great gift that we did this early because this gave us time to enjoy our days together without worry. Are there any magic cures....I looked on the net for days and days and NO there is no cure. I tell you to let your wife decide what chemo and radiation she wants to do and when she wants to stop support her. I have a friend now dying from Ovarian cancer...she has fought the good fight since 2010 but her body is unable to take anymore and she has decided to stop and let go. My sister has a friend that has been fighting breast cancer, now in her bones for 15 years and she is continuing on still. Everyone is different and all you can do is love and support their life decisions. You and your wife will be in my prayers. |
Posted By: Medclinician2013
Date Posted: September 07 2014 at 10:06am
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My thoughts and prayers are with you and your wife DrJohn. Please do contact me when you can. ------------- Medclinician - not if but when - original |
Posted By: Johnray1
Date Posted: September 07 2014 at 12:18pm
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To All,I appreciate your thoughts and your prayers.We need them.Johnray1 |
Posted By: Jen147
Date Posted: September 07 2014 at 12:19pm
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Johnray1, So very sorry to hear this. The others have posted very good advice & thoughts. There is no one size fits all with cancer. The Cancer Center where your wife might receive treatment could be a wealth of information. They almost always have a nutritionist on staff. Along with medical treatment feeding your body the best way will help. If anything it will help her to tolerate the treatments better. The Cancer Center should also have clergy on staff. They will likely visit her while she is in treatment just to touch base & see you the two of you have interest in just talking, counseling and/or prayer together. Whatever your belief system I highly encourage you to take advantage of this. They are usually gentle compassionate people who just want to support you. There is a longing in our hearts for our Creator. Fall into His arms now & He will carry you through this.
My Mom passed away from breast cancer in 2005 after an 8 year battle, 5 of which it was stage 4. She had a wonderful attitude about it, her spirits stayed very high. That's not to say you won't have bad days where all she does is cry & ask why... or angry days or depressed days. The key is you both are allowed to feel how ever you need to feel that day.
My Mom did more living in those 8 years than she had all the decades before of her cancer free life. So live life, enjoy everyday, go on trips if that's what she wants, have a huge family reunion, go on a cruise with several close family members or friends. If that's not your cup of tea then take it slow & quiet if that is more your personalities...
No matter what, live & enjoy, but never give up as the others have said. Never have a defeated attitude. Be realistic but optimistic. She is not gone yet... no matter the statistics quoted by the Dr. every patient is different & you do not know what is to come.
You & Nancy will definitely be in my prayers!! Please keep us updated we are here for you and truly care what is happening! Thank you for reaching out & sharing this with us in the first place.
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Posted By: Johnray1
Date Posted: September 07 2014 at 12:20pm
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cobber, the lympadenectomy and the omentectomy were included in the surgery.Johnray1 |
Posted By: KiwiMum
Date Posted: September 07 2014 at 2:03pm
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I'm so sorry to hear about your wife's illness. Please send her my best wishes for a speedy recovery. I'm a big believer in Lugol's solution as a supplement for overall health. It is also known to help with cancers. The other thing that I would recommend is laughter. Cancer is very scary and sobering and a good dose of laughter will do her body and spirit no end of good. Focus on the positive if you can. The mantra I use in my life when I need help is a quote from a medieval British saint, St. Julian of Norwich (she was actually a woman despite the name) and she said "All shall be well, and all things shall be well, and in all things, all shall be well". It might sound meaningless, but try saying it outloud to yourself. It really works, and it has really helped me in the past. I wish you both well. ------------- Those who got it wrong, for whatever reason, may feel defensive and retrench into a position that doesn’t accord with the facts. |
Posted By: Jen147
Date Posted: September 07 2014 at 3:37pm
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Johnray I neglected to mention something else in my post above. My mother in law was dx with small cell lung cancer in May of 2011. She did chemo & radiation with prophylactic radiation on her brain because the oncologist explained that small cell likes to reoccur &/or hide in the brain. She was given the same outlook 2 to 3 years with treatment... as of today Sept. 2014 she is still in remission.
The Cancer Center should also have a Social Worker on staff. The Social Worker at my Mother's cancer center was a life saver for me. They can help with insurance communications or if you don't have insurance they can help you find help. They can help with home health aids and equipment. Plus many more practical every day things that seem overwhelming when you are going through all this.
Educate yourself on the Hospice programs in your area. People don't like to think about Hospice because it's usually associated with being on your death bed. But that is not true at all. My Mother had Hospice for 2 years. They are Wonderful! Again the resources they can offer are amazing.
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Posted By: Nanook
Date Posted: September 07 2014 at 8:05pm
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I am praying for you and Nancy, John! Keep strong. ------------- Always be Prepared! |
Posted By: Johnray1
Date Posted: September 07 2014 at 11:01pm
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Nanook,thank you very much. We both appreciate it. We both know that GOD is her only real chance.Johnray1 |
Posted By: coyote
Date Posted: September 08 2014 at 6:37am
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Hi Johnray..So sorry to hear about your wife. My prayers to you both..Dan ------------- Long time lurker since day one to Member. |
Posted By: Johnray1
Date Posted: September 08 2014 at 10:05am
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coyote,thank You.Johnray1 |
Posted By: pheasant
Date Posted: September 08 2014 at 12:30pm
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So sorry to hear this Johnray1, my wife and I will also be praying for you both, Danny ------------- The only thing we have to fear, is fear itself......FDR |
Posted By: nc_girl
Date Posted: September 08 2014 at 12:52pm
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Praying for you both JohnRay. My sister died of breast cancer in her early 40s. She had been diagnosed with stage 3 cancer and knew there were no treatments available so she refused, had surgery to remove the breast and cancer and then went to eating extremely healthy. It was the 80% raw whole food and 20% cooked foods diet. The food that does get cooked is cooked at low temps. She stayed healthy and well for over 3 yrs and when she got very, very, very stressed out (no need to go into details here but let's just say she had a teenage daughter and only child), the it came back and it came back with a vengence. She was gone within 6 months after a hard fight against it. I firmly believe that stress is a big part of cancer and healthy eating too and think that if her daughter hadn't done some stuff to stress her out, it wouldn't have come back. Of course, she told me later that she had been told at the time of her diagnosis that the kind of cancer she had would keep coming back and in shorter and shorter time increments and would be more aggressive each time so I dunno. I will pray for you though. |
Posted By: Technophobe
Date Posted: September 10 2014 at 5:15am
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I don't know if this will be any help, Johnray. But the last post on this thread is possibly helpful. http://www.ebolainfo.org/zmapp_topic29932_post224626.html#224626 - http://www.ebolainfo.org/zmapp_topic29932_post224626.html#224626 The link he gives is for infectious diseases but apparently some of these cures apply to cancer too. I followed some of these "leads" on youtube to see where they led. They may just be "snake oil" again but you never know. http://https://www.youtube.com/watch?v=dYd45VXrUH4 - http://https://www.youtube.com/watch?v=dYd45VXrUH4 Is realy depressing at the start and I would advise skipping the first 20 minutes. But it lists herbal treatments. I have not tried cancer treatments, but have been using herbal remidies for years for other things and the results can be dramatic! The thing with herbal remidies is that they cannot undergo the safety testing of manmade drugs, because this is too expensive if you cannot then go on to patient the result to make money. Liposomal vitamin C seems to have some followers http://https://www.youtube.com/watch?v=vTXSTGGRvKY - http://https://www.youtube.com/watch?v=vTXSTGGRvKY and there is instructions to make it on http://https://www.youtube.com/watch?v=jYRIjhReC8o - http://https://www.youtube.com/watch?v=jYRIjhReC8o If this is rubbish, at least it is fairly safe. Overdosing on vitamin C only causes diarrhoea. Whilst on chemo' one would probably not even notice. There is a big following for baking soda as a treatment. http://https://www.youtube.com/watch?v=KnEQFno794s - http://https://www.youtube.com/watch?v=KnEQFno794s Personally I don't have a lot of faith here. I do not claim to have much data to base this opinion on, so it is just that, an opinion. Assuming it does work it does so by removing candida albicans from the body. This is more easily done by using Lufenuron which is marketed as a flea treatment for dogs and cats. It destroys the chitinous covering of said fleas biochemically. In doing so it also destroys the cell walls of candida. If one has a very big systemic candida infection by lowering the imune system chemotherapy would make this worse. I do not know that candida promotes cancer, but the idea was proposed by an oncologist. If it is that simple, then of course fluconazole would do the trick too (this is available as a fish antibiotic). I can't make any of these decisions on your behalf, but if it were me I would be using conventional treatments and use some of these alternative treatments as a supportive treatment for the mainstream stuff. Green tea, red clover and the apricot kernels that Albert suggested all work as a gentle form of chemotherapy so would make a good supportive list to the medical profession's approach. I've just looked up Kangalite http://www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/what-is-kanglaite - http://www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/what-is-kanglaite and that seems to be another one on the supportive list. - He's a smart cookie our Albert. The idea of shark cartilage may have some assistance to offer here too. It suppresses angiogenesis which cancers must have to continue to grow tumors over a certain size. Cannabis is the very best treatment for the nausea which comes from chemo'. There are snake-oil salesmen who are claiming it treats/cures cancer. I personally have no faith in this, but it will make chemo' much more bearable. I believe it is legal over the border in California for medical uses. I will go on looking. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Technophobe
Date Posted: September 10 2014 at 5:58am
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The idea behind this is sound (if a little odd). http://https://www.youtube.com/watch?v=VGsp5b8VlI0 - http://https://www.youtube.com/watch?v=VGsp5b8VlI0 ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: ParanoidMom
Date Posted: September 10 2014 at 8:24am
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My prayers are with both you and your wife. A cancer diagnosis is always frightening. I might suggest you look into Essiac. It has been around for many, many years. It is all natural and doesn't seem to contain anything that can harm. I have a very dear friend who is now using this method. She chose to not use any conventional treatments. She has been using this for the past five months. Honestly, I haven't heard one way or another if things are better or worse from a medical testing point. She seems to feel a little stronger and is taking each day as it comes. I have also read that removing all refined sugars from the diet helps to "starve" the cancer cells. There is a great deal of information on this as well. The biggest thing to remember is to make sure whatever you do or try will do no harm. ------------- But the souls of the righteous are in the hand of the Lord Wisdom of Solomon 3:1 |
Posted By: Johnray1
Date Posted: September 10 2014 at 11:28am
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Technophobe and ParanoidMom, Thanks for the suggestions,but I have been a practicing Family Practioner since 1987. During that time I also got into alternative medicine in a big way.I have found a lot of good and helpful things in alternative medicine that I integrated into my practice. I also found many.many so called "Cancer Cures". I have never recommended one of these cures,but I have seen many people try some them. I have never seen even one that worked.Johnray1 |
Posted By: ViQueen24
Date Posted: September 10 2014 at 10:37pm
| Let me add my voice to all the expressions of support and prayer. If I might, I'd like to recommend a book that helped the son of a friend of mine that had lymphoma, Remarkable Recovery, by Caryl Hirschberg with Marc Ian Barash. I don't remember specific suggestions in the book, but the young man told me later (he's alive and well and 30 now) that there were parts of the book that just helped him be more upbeat and positive when he was discouraged or sick and miserable from chemo. Attitude is everything, and it might help in lighten her load. Sending positive thoughts down from Da Burgh to my neighbor in WV and your good wife. God bless yinz! |
Posted By: ParanoidMom
Date Posted: September 11 2014 at 8:23am
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I'm sorry if our responses here have upset you in any way. Your original post seemed to suggest you were looking for ideas. I personally never meant to give the impression what I mentioned was a "cure." My prayers are still with you both. ------------- But the souls of the righteous are in the hand of the Lord Wisdom of Solomon 3:1 |
Posted By: Elver
Date Posted: September 12 2014 at 9:25pm
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I am so sorry to hear about your wife. The only suggestion I might add here is to have her quit eating sugar completely. My cousin had cancer on his lung and brain and has survived for longer than 5 years. I didn't think this was possible so there is always hope. |
Posted By: Guests
Date Posted: September 12 2014 at 9:37pm
| Johnray1 please give us updates when you feel ready. Your wife is in my daily prayers so I think about her. I know how hard it is so share when ready. |
Posted By: newbie1
Date Posted: September 13 2014 at 8:50am
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Hi Johnray I am so sorry to hear about Nancy - my thoughts and prayers are with you, her and all your family & friends. I had a SAR dog who was my 'partner' for years - not just in the Search & Rescue work, but in life. She was diagnosed with a terminal cancer and I did what you are doing - starting looking for cures. The type of cancer she had was inoperable and dogs live 3-9 mos with 6 being about average. She lived 16+ mos and I believe would have been longer (poss even healed) except that as she got 'better' I had blood work done, the vet said she was now 'free of it' so I stopped the Ganoderma mushrooms and within a week it was back with a vengeance, causing seizures etc... I never should have trusted the blood work, never should have stopped the program I had her on, I should have just kept on with treatment - till I felt she was 'well' vs what blood work said - I believe either blood work was blotched (maybe samples switched at lab) or that vet read them wrong/interpreted totally incorrectly. I've kicked my own butt many times for this - not following my gut. Anyway - for her the Ganoderma mushrooms really seemed to work - here are some links http://www.healthdiaries.com/eatthis/10-health-benefits-of-ganoderma-lucidum.html This one has short video: http://www.ganoderma-for-health.com/ganoderma-lucidum.html This is a resourse page for all kinds of studies done on it: http://www.ncbi.nlm.nih.gov/pubmed?term=ganoderma%20lucidum%20cancer I know it (any herb) has different effective rates on different types of cancer, I'm not well voiced in this - esp in humans, but I know if I got diagnosed I would try the ganoderma after seeing how well it worked on Angel. ------------- Cherish each moment |
Posted By: Penham
Date Posted: September 13 2014 at 7:32pm
| Johnray1 I am soooo sorry to hear this news. Your family is in my thoughts and prayers! |
Posted By: Johnray1
Date Posted: September 13 2014 at 9:08pm
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Penham,thank you.We need your prayers.Johnray1 |
Posted By: Johnray1
Date Posted: September 13 2014 at 9:16pm
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newbie1,Where can I order some of this Ganoderma Mushroom?Johnray1 |
Posted By: Johnray1
Date Posted: September 13 2014 at 9:30pm
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newbie1,I have just ordered one bottle of "Ganoderma Mushroom Spores" and one bottle of "Imperial Blend".Thank you for the suggestion and information.Johnray1 |
Posted By: Johnray1
Date Posted: September 13 2014 at 9:35pm
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Too All, have any of you ever heard of the healing power of "Black walnut Tincture". I have used it very successfully in all kinds of unexplained bowel problems and health problems,but I have never used it to fight CA. I have many patients who now make their own and they swear that it will cure anything. I will not go that far,but I know that it has helped to bring health to many people that the medical world had given up on.Johnray1 |
Posted By: Albert
Date Posted: September 14 2014 at 6:17am
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Here is a little info John. It seems a little promising. I have a close friend battling stage 4 lung and another with stage 3 stomach. I'm going to send the info their way about black walnut. I believe you can buy it over the counter at health food stores. Anything is worth a shot. Black WalnutOther common name(s): black walnut hulls, English walnut, butternut, oilnut Scientific/medical name(s): Juglans nigra DescriptionThe black walnut is a hardwood tree that grows widely in the United States, Canada, and parts of Europe. It can reach a height of more than 100 feet. The nut hulls, inner bark, leaves, and nut (also called the fruit) are used in herbal remedies. OverviewAvailable scientific evidence does not support claims that that hulls from black walnuts remove parasites from the intestinal tract or that they are effective in treating cancer or any other disease. Early evidence from laboratory research suggests that juglone, a compound in black walnut, may have the potential to reduce cancer risk. However, studies in humans have not been done. How is it promoted for use?A small number of herbal medicine practitioners claim that cancer is caused by a parasite. Some of these practitioners claim that a tincture made from black walnut hulls, wormwood, and cloves will kill the cancer-causing parasites, preventing or curing the disease without causing significant side effects. Black walnut is claimed to effectively kill more than 100 types of parasites. Black walnut is also promoted as a natural remedy for such wide-ranging conditions as acne, thyroid disease, colitis, eczema, hemorrhoids, ringworm, sore throats, tonsillitis, skin irritations, and wounds. Supporters claim black walnut hulls can be used as a mild laxative that eases general digestive problems. Because some people claim that it kills parasites in the stomach and intestines, they recommend black walnut for those who travel to areas with contaminated water supplies. What does it involve?One part of the black walnut tree used as a remedy is the hull of the fruit (the outside of the nut), which is harvested when it is green. Black walnut hull is available in tablets, capsules, and tinctures. However, some claim that only a tincture, a preparation in which the substance is mixed with alcohol, is effective. Some companies include powdered bark from the tree along with the hulls in their black walnut supplements. The leaves of the black walnut tree are sometimes used to make tea or placed directly on affected skin to treat ringworm or other skin conditions. Black walnut leaves are available in capsules and tea bags. The inner bark can be used to make infusions, and is sometimes ground with the hulls. What is the history behind it?Ancient Greeks and Romans called black walnut fruit the "imperial nut" and reportedly used the hull to treat intestinal ailments. Black walnut has also played a part in Russian folk medicine since the seventeenth century. Throughout history, every part of the tree has been used in folk medicine to treat dozens of conditions, including the bite of a mad dog. According to traditional Chinese medicine, eating black walnuts builds physical strength. In Texas folk medicine, black walnut extract is considered an effective treatment for scorpion bites. Today, craftspeople and artists prize the tree's fine-grained wood for making furniture and carvings, and the nuts are a safe and very popular food for people without nut allergies. Walnuts have been noted to contain omega-3 fatty acids as well as antioxidants such as folate and vitamin E. What is the evidence?Available scientific evidence does not support claims that black walnut hulls, bark, or leaves can cure or prevent any disease, including cancer. The notion that parasites cause cancer or that they can be killed with herbal remedies is also unsupported by the available scientific evidence. Of interest, small studies in the lab have suggested that a compound called juglone, which is present in black walnut, may have some antitumor activity. However, studies have not been completed to find out if juglone can help prevent cancer in humans. In addition, some studies in humans have suggested that eating walnuts (the nut itself, not the hull, leaves, or bark) can lower “bad” cholesterol and reduce the risk of heart disease. Most of these studies were done on the English walnut, a close relative of the black walnut. The study findings may not pertain to black walnuts. Are there any possible problems or complications?This
product is sold as a dietary supplement in the United States. Unlike
companies that produce drugs (which must be tested before being sold),
the companies that make supplements are not required to prove to the
Food and Drug Administration that their supplements are safe or
effective, as long as they don't claim the supplements can prevent,
treat, or cure any specific disease. Some
such products may not contain the amount of the herb or substance that
is on the label, and some may include other substances (contaminants).
Actual amounts per dose may vary between brands or even between
different batches of the same brand. In 2007, the FDA wrote new rules
to improve the quality of manufacturing for dietary supplements and the
proper listing of supplement ingredients. But these rules do not address
the safety of the ingredients or their effects on health. Most
such supplements have not been tested to find out if they interact with
medicines, foods, or other herbs and supplements. Even though some
reports of interactions and harmful effects may be published, full
studies of interactions and effects are not often available. Because of
these limitations, any information on ill effects and interactions below
should be considered incomplete.
In horses, black walnut wood or extract is known to cause a serious inflammatory disease called equine laminitis, which involves a buildup of white blood cells in the hooves, resulting in pain and lameness. Because of the lack of research, little is known about the potential side effects of black walnut hulls or leaves in humans. However, allergy to tree nuts is common, and severe allergic reactions to walnuts have taken place. People who are allergic to other nuts, especially pecans, may also react to walnuts or walnut products. Note that black walnut is included as part of certain dietary supplements, so check ingredient lists carefully if you have allergies. Relying on this type of treatment alone and
avoiding or delaying conventional medical care for cancer may have
serious health consequences. http://www.cancer.org/treatment/treatmentsandsideeffects/complementaryandalternativemedicine/herbsvitaminsandminerals/black-walnut ------------- https://www.facebook.com/Avianflutalk |
Posted By: Johnray1
Date Posted: September 14 2014 at 5:56pm
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Albert, you can buy Black Walnut Tincture at some health food stores and Vitamin stores or order it from several places on the internet,but I have always found it very expensive. I make my own and my patients do to. I will tell you how I make mine. First I go to Walmart and buy 5 "Sun Tea" jars. The kind of jars that you fill with water and put some tea bags in them and set them out in the sun and make tea. The reason I use the "Sun Tea" jars is that they have spout on the bottom of them and it makes draining the Walnut Tincture into smaller containers very easy. Then you have to get the walnut while the hull is still green and before the hull starts to turn brown. There are just a few days in the fall that you can gather the Walnuts. When they are at their best with anti-parasitic chemicals. I always find a few Walnut trees in the summer that have Walnuts on them. All Walnut trees do not have Walnuts on them every year. Then I wait until about this time of years and I check the walnut trees everyday. When the Walnuts start to drop from the trees on their own,I start picking up Walnuts that day. If I need to I will knock a few green Walnuts off the tree to get as many as I need. I actually shoot the twig into holding the Walnut with a .22 cal rifle. I do not climb the trees. There would not be any thing wrong with climbing the trees and shaking the limbs, I just like to shoot them off. Then I fill all 5 of my "Sun Tea" jars with the whole green walnut. Then go to the liquor store and buy a few half gallon bottles of "Ever Clear" grain Alcohol. I cut the grain alcohol 50% with distilled water and I fill the Sun Tea jars, (with Walnuts already in them) with this now 100 proof alcohol.They have quit selling Ever Clear alcohol in this state so now I use 100 proof Vodka straight(I do not cut it.)It does not taste good if it is made with 100 proof Vodka but it still works. Then set the jars full of Walnuts and alcohol in a place where they are safe from being knocked over and OUT of direct sun light. I let them set there for 4 or 5 day or until the liquid starts turning a browish-green. Then I start draining this tincture off with the valves at the bottom of the Sun tea jars. If you have made go tincture,you can take a small bottle into the sunlight and shake it up and then watch the color as it runs down the side of the container and it will have a greenish tinge to it. It is good for basically ever if you keep the lid on the bottle and not let it Oxidize.I recommend 2 teaspoons three times a day for someone who is really sick and continue it for a few days past when they start feeling better. Many of my patients just take a drink or two three times a day or when their stomach or bowels or sickness starts to bother them again,if it does. I have some patients who just drink some tincture every now and then profolactically. If you are treating any alcoholics,you can make the tincture with water. It just takes bigger doses.Johnray1 There was an interesting event that took place during the American Civil War. The battle was the Battle of Shilo. It was a very big battle with many casualties on each side. One problem that all of the troops had was a lack of water delivered to them. There was one little swampy area that had a large Walnut tree at its edge. Many of the wounded soldiers on both sides crawled to this swampy water hole to get a drink of water.The Walnuts from this large tree had been falling into this water for years. But after the battle and the medical personal were looking for wounded they found many at this swamp drinking the Walnut tinged water. Then some Doctor noticed a few days later,that of all of the people who died of their wounds, not of the troops that they had found at this swamp drinking the walnut tinged water, NONE of these soldiers had died.Johnray1 |
Posted By: Guests
Date Posted: September 15 2014 at 3:48pm
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Hello, Johnny Ray, Very sorry to hear that. You might find this link interesting. http://www.essiacinfo.org/caisse. - http://www.essiacinfo.org/caisse.html Praying for you both. God bless.
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Posted By: Johnray1
Date Posted: September 15 2014 at 7:00pm
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sheep lady.thank You.Johnray1 |
Posted By: debg
Date Posted: September 16 2014 at 9:45am
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So sorry to read about your wife - prayers for you both. |
Posted By: Technophobe
Date Posted: February 27 2015 at 4:12pm
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I do not know if this is any help at all but I have found a clinical trial. http://www.cancer.gov/clinicaltrials/search/view?cdrid=758254&version=HealthProfessional&protocolsearchid=6175360 - http://www.cancer.gov/clinicaltrials/search/view?cdrid=758254&version=HealthProfessional&protocolsearchid=6175360 I know I can be very little help and I am sorry for it, but I am still looking and praying for you both. Maggie ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Guests
Date Posted: February 27 2015 at 6:57pm
| I am just a guest on this forum but would like to make a suggestion to JohnnyRay. I have heard some rather remarkable results from Raspberry Gold on the treatment of rather aggressive cancer. From what I have read I do not believe that this will cause harm; it might not help but will not harm. God gives us remarkable treatments in phytochemicals and He can heal. Best wishes, Ann |
Posted By: arirish
Date Posted: February 27 2015 at 7:18pm
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johnray- We are all thinking of you and Nancy. I have a friend who five years ago was given six months to live! He's still going strong! I lost what i thought was going to be a life partner when I was younger! Please don't concede, don't give up or surrender! We're all headed for the same finish line, it's how we reach the finish that counts! Give her all the love and laughter you can and cherish every day, every hour and minute! Hate and pain die, love lasts forever! I wish we could do more! ------------- Buy more ammo! |
Posted By: Johnray1
Date Posted: February 27 2015 at 8:45pm
Technophobe,thank you very much and please keep praying.Johnray1
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Posted By: Jen147
Date Posted: February 27 2015 at 9:36pm
| Prayers continued Johnray! You can use this thread if you ever want to update how Nancy is doing. Many of us would like to hear how things are going, but of course understand if you'd rather not talk about it also. |
Posted By: Kay
Date Posted: February 28 2015 at 1:29pm
| Johnray I'm adding Nancy to my prayers today, and you. God bless you both. |
Posted By: Johnray1
Date Posted: February 28 2015 at 6:22pm
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Kay,thank you.We both need your prayers and every ones prayers.Nancy is very weak now.Johnray1 |
Posted By: Guests
Date Posted: February 28 2015 at 6:38pm
| Prayers for you and your wife. Take care of each other and say all you need to say. |
Posted By: Hazelpad
Date Posted: February 28 2015 at 7:24pm
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I dont wish to speak out of turn, some stranger on a forum, from half way across the world, but I just wanted to send you and your wife my thoughts and wishes. I lost my mum to cancer when I was a teenager. I refused to leave her and spent the last week of her life curled up on the bottom of her hospital bed fending off the well meaning nurses telling me to go home. She had become jaundiced which in the nightlights cruelly made her look so healthy. Back then I had no one left but her in my life, and we clung on together for the last few days. She could hardly move, but every now and then she would lift her hand and stroke my hair for a few seconds....those few seconds are one of the most precious memories I have. More was said in those few moments, though no words were spoken. I am sorry she is very weak, but she will know you are there, even if at times she is too tired to hear, speak, or see your love, she will be able to just feel it from you. As I said I probably speak out of turn, but I just wanted to say thoughts are with you and yours. X |
Posted By: Johnray1
Date Posted: March 01 2015 at 5:46pm
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Hazelpad,thank you,This morning she was too weak to open her prescription bottles and she also could not see well enough to read what was in each bottle.This caused her great embarrassment to tell me this. I told her that I was here to take care of her and I was going to take care of her. She has 3 Chemotherapy treatments left and she is thinking about not getting them. She is so weak and hurts so much after treatment. I told her that the decision was hers to make,not mine. The Oncologist has never lied to us,he has always said that the Radiation and Chem MIGHT buy her a little time,there was no long term hope with this particular Cancer. I do not mean to brag on myself,but I am a real life tough guy both physically and mentally and I have done many very dangerous things for my country,but nothing has prepared me for watching my wife slowly die. It is tearing me apart. Johnray1 P.S. We both need all of your prayers. |
Posted By: Jen147
Date Posted: March 01 2015 at 7:38pm
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Johnray, my heart just breaks for you! I have not watched a spouse slowly fade (although members here have) but I did this with my Mom, she was just 59. It had been me & her against the world most of my life so it was very hard. She was a strong independent woman & letting go of being able to do things for herself might have been the hardest thing for her. And to see the role reversal of me taking care of her after years of her taking care of me was also hard on her, she did not want to relinquish control & did not until she was absolutely physically unable to do things. It was a balance for me to find where I could step back & let her have her dignity & where I had to press her to let me help. Earnest prayers for you & Nancy!! |
Posted By: Technophobe
Date Posted: March 02 2015 at 1:42am
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I know you are strong, Johnray. But, I cannot imagine how hard this is for you. I am sorry I cannot be there physically to put the kettle on and hold a hand. But I know I speak for many of us here when I say we are all listening and feeling with you. Though this is a dreadful, cruel disease, there must be a small ray of light for Nancy in your steadfast care. Love makes anything bearable however awful. My thoughts and prayers go with you. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: WillobyBrat
Date Posted: March 02 2015 at 2:38am
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Johnray, It is with great sorrow that I learned of the deterioration in your wife's physical health. Men like us can handle the trauma of war and our physical pains. But I know the agony and doubts that this situation must be placing upon you. I pray to "The Great Mystery" for a miracle to take this moment from you both. Whatever happens, your strength and the love you have for your Nancy will either ease her passing or be there when she is raised above it. From our communications in the past, I am aware that you are a kind and considerate man towards your fellow human beings and I am personally sorry that you and Nancy are having to face this time together. God Bless you both. Bernard. ------------- I like Ike |
Posted By: rickster58
Date Posted: March 02 2015 at 5:26am
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Hello Johnray I'm deeply saddened to read your post and I wanted to let you know that both you and Nancy are in my prayers. You have many friends here who care deeply about you. Be strong Johnray and may you be blessed with peace and strength. God bless you both. Rick ------------- spam hunter extraordinaire |
Posted By: Albert
Date Posted: March 02 2015 at 5:42am
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Very sad Johnray. There are no words that can be said to help you with this my dear friend. Let her know that a handful of folks from around the world here are thinking about her and praying for her. We're here with you all the way Johnray. I know it's like a bad nightmare that won't end, and I really have no idea what to say. Very sad time Johnray.. keep the faith is possible my friend. ------------- https://www.facebook.com/Avianflutalk |
Posted By: Johnray1
Date Posted: March 02 2015 at 6:24pm
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Thank all of you,we need everyone's prayers and I appreciate them. WillobyBrat,thank you. This is the first time that I have ever faced any enemy that I can not shoot,stab,hide from, call in artillery or airstrikes on. I do not know how to fight it,this enemy will not ever jump on me and kill me.You know that sometimes you are engaged with an enemy and you know that one of you are going to be killed fast. This damn Cancer will not engage, but it is still killing my wife and I can not stop it..Johnray1 |
Posted By: Johnray1
Date Posted: March 02 2015 at 7:47pm
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Technophobe,thank you for the thoughts.I could use some one who knows how to use pots and pans. No one,here, seems to understand this. I have had to take a self taught crash course in being a house wife.It is very hard.Johnray1 |
Posted By: Technophobe
Date Posted: March 03 2015 at 6:08am
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I can't come over to help but will gladly answer any questions you may have Johnray. If your wife is very house-proud and unable to do anything, then picking up anything left on the floor or the tops of things and putting them away (or even just folding/stacking them neatly) will go a long way to cheering her up. Men don't see mess generally, until the mice, cockroaches or rats arrive, but women do - and judge each other for it. So, you will need to train yourself here. Just divide the room mentally into 8 parts (floor West, floor North, floor East, floor South + walls N, S, E, + W.) now, stand in the middle of the room and look at each quadrant in turn for obvious dirt or untidiness. Don't worry if you are a total failure at this, she will appreciate the effort. Cooking is as easy, or as hard as you want to make it. I do not suppose Nancy wants anything fancy here, so here are some simple ideas: Cereal and or toast for breakfast. You can add fruit juice too, which goes down very well with most invalids. None of that requires any cooking except toast which the toaster handles for you. [Don't let anyone tell you that boiling an egg is easy. It is simple in theory, but actually quite hard to get right. Fried or poached eggs are much easier as you can look and see how they are doing. If fatty food is too unpleasant to eat, then poaching is best. Do you have a poacher? - It looks like a frying pan with a lid containing a strange contraption of cups sitting half way through an inner lid inside. The eggs go in the cups (you will need to grease them a little first) put boiling water in the bottom, the outer lid over the top and boil on the stove until done enough. Sandwiches generally work well for lunch. You can add fresh salad or tinned or packet soup depending on weather. This covers snacks as well. [This really is simple just peel and chop/slice/grate whatever is around for salad. If you bung any left overs from this into a pot with a stock cube and a chopped up onion then boil for about 15 minutes you get soup. You can thicken this with cornflour, potatoes, split peas or lentils (cornflour needs to be added mixed with a small amount of water at the end - about 1 tablespoon per pint, - potatoes, peas and lentils need at least 20 minutes to cook), This is a good standby for invalids as a quick whizz with a blender turns it into a smooth, nourishing liquid.] Dinner is just as easy. Let me know what Nancy likes and I will post some simplified versions for you. It would help to know what form your supplies take too. Frozen tv dinners need a totally different approach from something you shot, cooked with kitchen garden produce. Stock cubes, Thickening granules, gravy granules, packet soups, frozen vegetables and a bottle of soy sauce (especially the low salt versions) simplify cooking massively for the beginner so let me know what you have. Importantly: Try to wash up as you go along. The longer it is left, the stickier it becomes. I'm not the house-proud type, but can give basic, simple advice on washing clothes or other domestic stuff too and I would like the opportunity to help where I can. My mum never taught me and I had to work it all out for myself so I know how to beat most of the problems you are facing in that respect. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Jen147
Date Posted: March 03 2015 at 7:24am
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Wow!! I love everything you said Techno! So true. I'm not so "house-proud" but I can not stand clutter! So if Nancy is this way you will go a long way in making her feel more at ease by making things tidy. It literally helps my mental & emotional state to organize & keep things in their place. And the opposite is true. I feel claustrophobic and smothered when things are hugely disorganized or in disarray.
A crock pot is so handy to have at times like this Johnray. You can put it in & forget it for half the day & it comes out wonderfully. Just about any meat, stews, vegetables... there are even recipes online to "bake" with your crock pot. Almost completely disaster proof. You know better the foods Nancy likes or can tolerate. But you can also cook for yourself in a crockpot too. Do take care of yourself as well. Caregivers need care also! You'll be no good to her if you don't treat yourself well.
Also I have known many people who's tastes changed after chemo. Some people are not able to taste at all afterward. If she is still doing treatments at a cancer center they should have a nutritionist on staff. That person can go a long way in suggestions for what to eat &/or how to fix it.
I do hope you will take Techno up on her offer. We are far from you in miles but we really do want to help.
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Posted By: Jen147
Date Posted: March 03 2015 at 7:26am
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Crock Pot Sweet Potatoes
 Prep time 5 mins Cook time 6 hours Total time 6 hours 5 mins Cook sweet potatoes in your slow-cooker or crock pot with this simple and fool-proof method.
Ingredients
Instructions
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Posted By: Jen147
Date Posted: March 03 2015 at 7:36am
| If her immune system is low her Dr may have said not to eat raw fruits & veggies. Only cooked. You'd have to ask the Dr or dietician if that is a recommendation for Nancy specifically. |
Posted By: Johnray1
Date Posted: March 03 2015 at 7:19pm
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Technophobe,everything that you said here is true. Rats are big enough for me to shoot. (joking). But I am slowly learning. Jen 147- thank you also.Everything that you two have said is true. I am doing my best and I learn more every day.So,keep the advice coming. Tonight is a particularly bad night. She has lost more than I realized she had,but I promised her that I was here to the end,no matter what. Tonight there that seems to be a consistent stream of ***** from our bed to the bathroom and back. There is nothing that I hate to clean more than *****. But I am doing it and I will continue to do it. Please do not delete this because other people in the future will need to know exactly what they face.Johnray1 |
Posted By: Technophobe
Date Posted: March 04 2015 at 3:51am
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I'm still here too. I wish I could be there. Carbohydrates and protein without fibre or fat is a good combination to "bind up" a "loose" system. Scrambled egg and rice is an edible way to achieve this. As a combination this is a bit low on vitamins C, D & B complex, as they tend to come with the veggies and in the case of B - offal, but you could supplement that with a pill. Keeping vitamin levels high (plus zinc) helps the immune system function, this system takes quite a hammering with chemo and radio therapy. For white rice take 1 level cup of rice and put it in a saucepan with 2 cups of water. Bring to the boil and immediately cover and turn down to the lowest setting of your cooker hob. That will need about 20 minutes (you can turn it off for the last 5 minutes but do not take the lid off yet. Do not touch it at all, if you stir it, it will go sticky and if you take the lid off, too much water will evaporate and the rice will be gritty and hard.) Now while you are waiting for the rice: If you have a non-stick pan you can scramble eggs without fat. Just heat and stir (with a wooden spoon or a plastic one or silicone - not metal that will ruin the pan) . You can add a dash of milk if you like and if Nancy likes spicy flavours a pinch of oregano and/or mustard and/or soy sauce. Put some salt and pepper on the tray when serving, as some people would find this too bland. But it is good invalid nutrition. Skip the fruit juice at breakfast, to keep the digestive system stable. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Johnray1
Date Posted: March 05 2015 at 2:42pm
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Technophobe,thank you very much. They may have worked on this diarrhea,but I think that this episode was caused from all the Radiation treatments that she has had. It is one of the side effects and it can happen anytime for the rest of the patients life.Johnray1 |
Posted By: Johnray1
Date Posted: March 05 2015 at 9:25pm
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Technophobe and Jen 147. I thank both of you.But I really would rather shoot rats than to keep house. This evening,I decided that the floor could not go any longer without a mopping. So I mopped it. My wife had a good day for most of this day. But after I got finished mopping the floor(with her watching). She was finishing the bowl of soup that I had made her for supper. I looked at her and she was finished for the day.She was totally worn out. But the look that I got from her and the look that I gave her,I think showed more love from each of us than ever before. I helped her to bed. The episode with the diarrhea and sickness that I told you all about lasted most of the night.But I did not stop cleaning and I finally helped her to bed for the last time,last night. If any one on this board is getting ready to get married,do not get married if you do not love your mate this much.Johnray1 |
Posted By: Jen147
Date Posted: March 05 2015 at 10:10pm
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What a bitter sweet post Johnray! I'm glad you found a ray of sunshine in your dark days.
What about getting a portable potty chair & sitting it next to the bed? It can be set aside when not needed. They can be purchased very reasonably at medical supply stores but even in some stores like Wal-Mart. Same with shower chairs. My mother would not use a potty chair until she was forced to. I get it. I understand why. They do not want to let go of being "normal". It's dignity. It's privacy. But there is no shame in it. It makes it easier on them & their caregivers. Things like this are just small adjustments to a "new normal". It's just something to think about. Much easier to empty a bucket than to constantly clean a floor.
Also John, I'm wondering... are you guys signed up for hospice? Hospice is not what a lot of people think. There are a lot of misconceptions. It's not saying I Quit, I give up. And you do not have to be finished with treatments or stop seeing your medical Dr. You do NOT have to have a diagnosis of 6 months or less to live.
Hospice can provide or help facilitate things like potty chairs, shower chairs, hospital beds, moisture proof pads that go on the bed, gloves & other medical supplies... even mechanical lift recliners in certain circumstances. They provide help with housework & cooking, emotional & spiritual support... and they have a huge heart for caregivers, giving them a break to go for a walk or go out to lunch with a friend, go run errands whatever you want to do to just get away for awhile, they will stay with your loved one. They also have nurses that visit regularly. They can work with the Dr to manage pain and any other symptoms the patient might be experiencing.
Sorry to sound like a Hospice commercial or something, I just loved, super loved my Mom's hospice team. She wanted no part of it at first (she was a stubborn woman, can you tell) but after just a few weeks Rhonda, who was our support person, became like a member of our family. My Mom just loved her. They would watch soap operas together, lol.
It's just something to think about. You don't sound like you have much support Johnray. For yourself or for Nancy. If you don't have family, friends, church family that can pitch in Hospice might be something to think about. Not saying it's right for everyone but I've yet to meet a family that didn't love theirs.
Keep posting John, it does good to write it out.
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Posted By: Technophobe
Date Posted: March 06 2015 at 2:18am
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It is difficult to work out the differences between services in America and Britain, but over this side of the pond our hospices are amazing. My spiritual teacher died in one about 2 years ago and was really enjoying life until the last. She managed a "ton up" motorbike ride less than a week before her death (pillion). I doubt she was pain free, she had suffered several very painful conditions for the last 25 years of her life and the pain meds. tend to lose their potency over time, but her pain management was sufficient to keep her happy. Mind you, she was a pretty tough cookie as well. As a carer for the last 20 years, I know how difficult this can be for you. You do need to devote some time to you too. Things would be even worse for Nancy, if you became too exhausted to cope. Some respite would help enormously, even if you just spend it sleeping! Believe me I "get-it". I became so exhausted caring for my disabled son I eventually put him into the care system, which broke my heart. In the end I had no choice, as my own health failed (you can't carry someone up and down the stairs when they are bigger than you and your hip has failed). Had I had more respite and support, maybe I could have gone on longer (a stairlift would have helped too, but they do not give those out for autisim, only for "physical" disabilities). Caring eats your savings, destroys your career, wears your mind and body out and can leave you incapable of enjoying any of the time you have left. Don't let it come to that, not just for you, but for both of you. Give yourselves a chance to get some fun out of your last bit of time together. The purpose of this life may be to prepare us for something better and greater, but that does not mean we are meant to be miserable while we are here. Life is a gift. Don't insult the creator by failing to appreciate it. Jen is giving truly great advice here. You are so right about the love bit. That makes anything bearable and does find those precious rays of sunshine in the dark. It is the part of us closest to God, a better reflection thereof than any other part of our makeup. The hidden good news is that it is truly permanent, even though our bodies are not. Jen is right about the posting too. Yours are the first ones I read when I log on and the last I read before I log off. We may be able to offer no physical help (d*mmit) but are listening and praying with you all we can.
------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Albert
Date Posted: March 06 2015 at 2:55am
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Johnray, you have a rat problem too? I know that an exterminator can get rid of them, but it will cost $500 +. Would you like me to find one for you? I'm staring to rethink the plan of a road trip out to you Johnray. I hate damn rats. There is a process to get rid of them, but I'm not sure you can do it as it requires quite a bit of work. What state do you reside in again? ------------- https://www.facebook.com/Avianflutalk |
Posted By: Johnray1
Date Posted: March 06 2015 at 4:31pm
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Albert,I do NOT have a rat problem. I was just saying that I needed to keep thing cleaned up or I would have a rat problem. The house gut a very complete cleaning and disinfecting last night.But NO rats here.John |
Posted By: Johnray1
Date Posted: March 06 2015 at 5:10pm
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Jen 147 and Technophobe,thank you for the information on Hospice in your area.But I know about Hospice care in this area. A few years ago,the DEA finished a 5 year undercover investigation and most of the hospice people went to prison. They were stealing the narcotics that were meant for the sick and dieing people and they were using the drugs themselves and they were also selling them. The lady who ran the narcotics part of hospice was one of the nicest people that I had ever meet. She was always well dressed,very clean, very well spoken and perfect in just about every way. She was also the person that was channeling the narcotics to the drug world. When the raid happened,the Feds and WV State Police hit 30plus houses all at one time. there was one guy in the drug world that had bragged many times that he was armed all of the time and he would kill cops before he went to prison. EVERYONE believed him,so he was taken down first.There were 70 plus arrested. The lady who was in charge of the Narcotics and was so nice and convincing could not be found. The police found her pocket book on the kitchen table and the kitchen window was open,but they could not find her. After a few days.the cleaning ladies at a motel about 25 miles from where most of the raid happened,complained of a foul odor coming from a room that had not been occupied in weeks. They called the police,the police entered the room and it was her. The police said that it was suicide,but I believe it was murder,but what I think makes no difference. Besides what I told you above,I have to be very careful with what and how I approach my wife. A bedside commode is a perfect idea,but my wife would probably go ballistic and scream at me that I was telling her that she was getting old and that only old people and dieing people had bedside commodes. She has not accepted anything yet and she is still pissed that she has cancer and she tells me that I gave it to her.I am still keeping up with the cooking,and the house cleaning so I do not need hospice yet. But I will call them when I need them. Another thing that Hospice if famous for around here,besides stilling narcotics, is for also stealing everything else that they can get their hands on in patients homes. They litterally dry clean homes. That is one reason that many of the people go to worlk for hospice,they get their narcotics,plus all that they can steal. Technophobe and Jen 147, do miss understand me,I still need and want all of the advice that I can get on anything, I am just not always able to carry out every thing that I need to do. My wife stays on the edge and many times,she goes over the edge.I have to introduce new things or ideas very slowly and sometimes that does not even work. Everyone please keep praying and keep sending me advice.I will do the best that I can.Thank you all.Johnray1 |
Posted By: Kay
Date Posted: March 06 2015 at 6:49pm
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My mom sounded a lot like your wife. She was always telling us she didn't want to look and act old or feeble. She passed when she came down with skin cancer, she was 90. We thought she had it licked but it went inside and caused tumors we found out when she started feeling bad. We immdiatley got hospice to come. They even send a chaplin to talk and the nurse will come running if they get bad and give advice or tell you how much medicine to give them, we had the pain medicine at the house. I suggest you ask her if she would like the porta pot for night time so she doesn't have to navigate so far in the night and maybe break a bone. Tell her you know she doesn't need it but for safety concerns she might want to consider getting one. Getting hospice in to be able to know them and learn about them and them about you will save you a lot of concern if things get bad. They don't stay at the house more than you want them too, they just check up to see what they can do for the patient. Check around in your area and see if they changed since all the raids took place. Check with your friends or church, maybe senior center or hospital. Talk to them outside the house to feel it out if you are uncomforable with them, and play it by ear.
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Posted By: Johnray1
Date Posted: March 06 2015 at 7:13pm
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Kay,thank you.That is the process that I will use,if and when I call hospice.I will suggest the porta-potty when she wakes up and see what happens. We have a master bedroom room and bathroom in our house. It is not very far from the bed to the commode and shower,but a porta-potty would save some cleaning. Kay, I think that I would have liked your Mom.Johnray1 |
Posted By: Jen147
Date Posted: March 06 2015 at 9:02pm
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Oh don't worry John we are not at all offended. Not every suggestion works for every person, that is why we are throwing so much out there. You will eventually find little nuggets of what we say & even if it helps a tiny bit it was worth pages and pages of suggestions that wouldn't apply.
We are here as long as you are, as long as you need. Like I said, even if you just need to vent we will listen. Sometimes there isn't anything anyone can "do"... sometimes you just need to come along side someone and walk silently with them, just being there, or saying, I hear you, I'm sorry you are having to experience this.
If you ever do get hospice... see if you can go outside your county even. My Mom was able to get medical supplies from Knoxville that was almost 200 miles away from her, it just so happened to be where her insurance had a company that was in network. That way you might could fish for help outside of the corruption that took place in your area. In the end, it's like churches... some people complain they don't want to go to church because of the hypocrites... there are good & bad in all churches, good & bad in all areas of business. You have to maybe do a little more digging to find what's right for you. If it is a concern for you should you ever invite Hospice in & if you have the money, install DIY surveillance cameras in your home, like Nanny Cams. Either choose to tell them that they (cameras) are there so it will set the tone up front that any bad seeds better steer clear or choose not to tell them, then review the camera footage after every visit. These can be purchased very inexpensively these days if you can do it yourself.
I agree with Kay on the potty.. if you want to "introduce" the idea to her start small like saying, hey honey how about a potty just for the night time or just when I need to leave the house when you can still have your privacy with it.
Change is hard. I despise it. Maybe I get it from my Mom, I don't know. But I can imagine where your wife is coming from. To switch from using a bathroom like you have all your life & like all the "regular" people are still able to do might feel like admitting defeat. It's a mental process that only she can work through. I will pray that she will see the advantage to both of you for her to be a little more flexible & a little more giving. It's not giving up, but giving to you for stress relief & practical help. She will see this eventually.
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Posted By: Guests
Date Posted: March 06 2015 at 9:51pm
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Hospice, in Denver it goes like this. A nurse comes 2-3 times a week to see if the pain meds, and other meds are working ok. Takes blood pressure, temp, feels pulse in feet and hands and asks if you need other services. Other services are bathing in bed if they can't take a bath or get in the shower. Basically, I did all the care. My husband did really well except for the last 24 hours. He died in the late afternoon so I never had a "nurse" over night in my house. We could have decided to go to a "hospice" place but my husband wanted to be at home and he went so fast there was no need for a hospice place. Now that being said I had a friend that just died and she went to a hospice place because her husband could not handle the food, cleaning, and just taking care of her. Not to be sexist but some men are just not comfortable with caring for a sick person and all that goes with that. My friend was really ill for several weeks unlike my husband who was good until the last 24 hours. Johnray1 do your best and when it is time for other care you will know the time. |
Posted By: Kay
Date Posted: March 06 2015 at 10:19pm
| You did a good job explaining flu mom. That's they way we did it for mom. |
Posted By: Technophobe
Date Posted: March 07 2015 at 4:03am
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I also am not offended, Johnray. Like Jen said, if being here on the other end of the keyboard is all I can offer, then I will offer that to the best of my ability. I am horrified to hear of the evil of your local hospice. That is an abuse of trust, on a par with child abuse. Those who prey upon others are scum, but those who prey primarily on those without defences are the worst scum of all. I do hope things are better now. It is difficult to offer advice without specific knowledge of the hurdles you face. I will keep trying though. You are well liked here on this forum and If nothing else we can be someone to talk to. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Albert
Date Posted: March 07 2015 at 6:27am
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You guys are great. Fantastic posts! This is exactly why going off topic is fine here. No forums engage in personal talk, which I don't really agree with because of cases like with Johnray. Not sure what the point of these forums would be if we didn't give a damn about people. That's why this place will be very valuable in the next pandemic. Johnray - Roger on the rats. My apologies. I've de-ratted a couple homes in the past when the residents couldn't do it, and I had a momentary flashback. No worries JR, we won't be ripping out your walls anytime soon, lol. We're here for you Johnray all the way 24/7. ------------- https://www.facebook.com/Avianflutalk |
Posted By: KiwiMum
Date Posted: March 07 2015 at 12:10pm
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Johnray, my grandmother died of cancer and in her last few weeks we had nurses living in. My parents didn't want her to go to a hospice as there wasn't one locally and she didn't want to go to one anyway. It was also Christmas time and she wanted to be at home (she lived with us at the time). So two special cancer nurses moved in. They were supplied by a cancer trust and I'm not sure if my parents had to pay for them or not but between the two of them, they cared for her around the clock. It worked really well, they were lovely women both in late middle age, and they really helped my parents by dealing with all the undignified physical stuff. My grandmother died 4 days after Christmas, she had become very sick and was definitely dying and so she was helped along by a large morphine dose from our local doctor - this was back in the 70's when doctors could be more compassionate - with the blessing of my parents and the nurses. My parents still talk about those kind nurses and what a blessing they were. ------------- Those who got it wrong, for whatever reason, may feel defensive and retrench into a position that doesn’t accord with the facts. |
Posted By: Johnray1
Date Posted: March 07 2015 at 5:21pm
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Albert and all.thanks very much.Johnray1 |
Posted By: onefluover
Date Posted: March 07 2015 at 5:54pm
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God Bless Nancy and you, John. In Jesus' name. Amen ------------- "And then there were none." |
Posted By: tamara
Date Posted: March 10 2015 at 10:50am
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Hello there, Your post has made me finally register after years of reading this website. I am so sorry for you and Nancy, and my prayers are added to yours. I have no medical advice to give, but i do want to offer a couple of suggestions from a friend who lost her mother last year. While Nancy is still feeling well enough be sure to get her voice recorded, she can just be talking about old memories or how she is feeling or sending a message to the people she loves. We often take pictures and forget the power of the voice. Have her write something to you also. Make sure you do get a picture of yourselves together, and take some time to relive some of the happier moments in your life. If you have a favorite song play it, a movie, watch it, a joke you share- tell it. As horrible as this may be, you are being given these moments together and that in itself is a small gift. May God Bless Both of You. ------------- The catapiller's end, is the butterfly's beginning |
Posted By: Jen147
Date Posted: March 10 2015 at 1:52pm
| Nice post tamara! I agree... after my Mom was gone I kept her answering machine which had her "please leave a message" message on it. She was old school & refused to update to even a cordless phone... anyway... one day for some reason a couple years after she'd died (she died in 2005) it no longer worked... I can tell you it was like grieving all over again. |
Posted By: onefluover
Date Posted: March 10 2015 at 4:56pm
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Excellent suggestion Tamara. And welcome aboard. Sorry about that Jen. I understand how that feels as it too has happened to me. My sugestions are for one to use their smart phone via an app and then email the high quality digital recording to themselves and then it can be preserved without degradation for pretty much all time. ------------- "And then there were none." |
Posted By: Johnray1
Date Posted: March 10 2015 at 5:39pm
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Tamara,thank you for taking the time to tell me these things. She is still able to use a cell phone and she talks to basically any one that she wants to.I will mention leaving recordings for people,but talking about leaving things for people is a very touchy subject,she has not accepted the possibility that she might die,even though all of the Oncologist have told her and me both that she does not have a chance. Thank You.Johnray1 |
Posted By: coyote
Date Posted: March 12 2015 at 3:15am
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Hey Johnray hang in there my friend! I said a prayer for you and Nancy this AM..Best,Dan ------------- Long time lurker since day one to Member. |
Posted By: rickster58
Date Posted: March 12 2015 at 4:50am
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Continued prayers for you and Nancy Johnray ------------- spam hunter extraordinaire |
Posted By: jacksdad
Date Posted: March 12 2015 at 6:45pm
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Great advice, tamara - and welcome. ------------- "Buy it cheap. Stack it deep" "Any community that fails to prepare, with the expectation that the federal government will come to the rescue, will be tragically wrong." Michael Leavitt, HHS Secretary. |
Posted By: Johnray1
Date Posted: March 13 2015 at 8:18am
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Thanks for the prayers.Please continue them.Johnray1 |
Posted By: onefluover
Date Posted: April 16 2015 at 7:43pm
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Scientists find key to 'turbo-charging' immune system to kill all cancers - Telegraph By Sarah Knapton, Science Editor 7:00PM BST 16 Apr 2015 Imperial College scientists are developing a gene therapy designed to boost immune cells A protein which ‘turbo-charges’ the immune system so that it can fight off any cancer or virus has been discovered by scientists. In a breakthrough described as a ‘game-changer’ for cancer treatment, researchers at Imperial College found a previously unknown molecule which boosts the body’s ability to fight off chronic illnesses. Scientists at Imperial College London, who led the study, are now developing a gene therapy based on the protein and hope to begin human trials in three years. “This is exciting because we have found a completely different way to use the immune system to fight cancer,” said Professor Philip Ashton-Rickardt, from the Section of Immunobiology in the Department of Medicine at Imperial, who led the study. “It could be a game-changer for treating a number of different cancers and viruses. “This is a completely unknown protein. Nobody had ever seen it before or was even aware that it existed. It looks and acts like no other protein.” The protein – named lymphocyte expansion molecule, or LEM, promotes the spread of cancer killing ‘T cells’ by generating large amounts of energy. Normally when the immune system detects cancer it goes into overdrive trying to fight the disease, flooding the body with T cells. But it quickly runs out of steam. However the new protein causes a massive energy boost which makes T cells in such great numbers that the cancer cannot fight them off. It also causes a boost of immune memory cells which are able to recognise tumours and viruses they have encountered previously so there is less chance that they will return. The team made the discovery while screening mice with genetic mutations. They found one type produced ten times the number of cancer-fighting T cells, suppressing infections and becoming resistant to cancer. Researchers found that the mice with enhanced immunity produced high levels of the unknown protein which is also found in humans. They are hoping to produce a gene therapy whereby T cells of cancer patients could be enhanced with the protein and then injected back into the body. It could end the need for harsh chemotherapies as the body itself would be fighting the disease, rather than toxic drugs. Dr Mike Turner, Head of Infection and Immunobiology at The Wellcome Trust, said: “The discovery of a protein that could boost the immune response to not only cancer, but also to viruses, is a fascinating one. “Further investigation in animal models is needed before human trials can commence, but there is potential for a new type of treatment that capitalises on the immune system’s innate ability to detect and kill abnormal cells.” Charities said the protein showed 'great promise' and were eager to see if it could be translated into humans. Dr Alan Worsley, senior science information officer at Cancer Research UK, said: “This exciting work in mice is still at an early stage and only looked at one type of cancer. “Cancer often finds a way to suppress the immune system, but drugs that overcome this and allow immune cells to target cancer show great promise. Research into the biology of the immune system could help develop more effective treatments by increasing the number of cancer-killing immune cells. “The researchers now need to figure out how to develop drugs that target this molecule, and whether doing so would be safe and effective in cancer patients.” The research was published in the journal Science. http://www.telegraph.co.uk/news/science/science-news/11542544/Scientists-find-key-to-turbo-charging-immune-system-to-kill-all-cancers.html - http://www.telegraph.co.uk/news/science/science-news/11542544/Scientists-find-key-to-turbo-charging-immune-system-to-kill-all-cancers.html ------------- "And then there were none." |
Posted By: onefluover
Date Posted: April 16 2015 at 7:52pm
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I pray that Nancy can hang in there for a few more years. This sounds to be the biggest of the biggest discoveries. Maybe you can begin now to get her in to be an early testee. I would do it myself. ------------- "And then there were none." |
Posted By: Technophobe
Date Posted: April 17 2015 at 5:40am
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Wow, what a find, Oneflu! I would go for the trials myself. As the protein is already found in the body, the possibility of adverse reactions is lower. I really hope they push for human trials soonest. Hang on Nancy. Fight! There is a real point to that terrible chemo'. ------------- How do you tell if a politician is lying? His lips or pen are moving. |
Posted By: Littleraven1
Date Posted: April 17 2015 at 6:05pm
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Prayers every day- for both of you. ------------- There's a bad moon on the rise |
Posted By: Guests
Date Posted: April 17 2015 at 6:31pm
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Albert and all,this discussion forum may turn out to be the most important thing that you have done. I have a question to. There is new product(at least to me) called 4-MU. It has been shown to stop the spread of prostate CA and a possible cure for prostate CA. This 4-MU is an over the counter in some countries,but I can not seem to find it for sell. I learned of 4-MU from the evening FOX NEWS from their medical expert. I know that is not a good source,but what he said was good. Do any of you know where I can legally buy 4-MU? Even though 4-MU is not meant for Endometrial Papillary Carcinoma. This is the only product that I have ever seen on a National TV network that let this be announced. So I am thinking that there are other over the counter products in some countries that could help her. I want to know how I can buy 4-MU legally for myself. Because we all know that any man who dies of any thing but Prostate CA.has died a premature death. I would appreciate any help on how to legally buy 4-MU?I would take it myself and also give it to my wife,because I have never seen a product that was suppose to CURE any kind of Cancer. Please every one continue your prayers and also let me know what you know of 4-MU and any other cancer cure products.?Johnray1 |
Posted By: Guests
Date Posted: April 17 2015 at 6:39pm
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You have been with me and for (Nancy) mu wife,since I first posted my wife's diagnosis. I thank you for this. This 4-MU that I am talking about is suppose to an over the counter product in some countries and was announced on an international Newa station by their medical expert. You may know far more about this and other products than any of us,because you had the good sense to turn away from the conventional stuff probably years ago. So if you will search your brain and your friends brains.You may know more than you think that you do. Please tell your husband hello for me, I know what it is like to be supposedly disabled from combat,but still know that you can contribute and no one will let you.Johnray1 |
Posted By: Guests
Date Posted: April 17 2015 at 6:42pm
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I do not know why I am being posted as a quest,when I am not a quest,I have been on this board for years as Johnray1.Johnray1 |
Posted By: rickster58
Date Posted: April 17 2015 at 7:22pm
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I don't know why this is happening Johnray1, your member profile is still the same but the ladder group is wrong. I'll flag it for Albert's attention. Continued prayers for you and Nancy ------------- spam hunter extraordinaire |